Hi Jezzies, how’s everyone?

Does anyone have any tips on how to handle an arthritis flareup? I’m having a really bad flareup at the moment, my knees are burning hot, so are my hips, and my shoulders, back, hips, knees and ankles are killing me. Also my knees and ankles have almost tripled in size.

I went shopping today, because I haven’t left the house all week, we needed more food, and I wanted some crafty things to do while I’m struggling to move. I forgot to buy my craft stuff, and spent most of the time in town crying and falling around. My Mum made our tea when we got home and I had painkillers then, and they don’t touch the pain, they just make me tired. It’s now 3am and I’m in bed, but I don’t know how to lie down that won’t hurt and I’ll be comfortable enough to sleep.

Has anyone here been tested for Ehlers-Danlos Syndrome? How do you get tested for it? My mum has said for years she thinks I have it, and my friend Cait texted me the other day, because her work friends’ son has been diagnosed with it, an Cait said straight away there were so many different things that I have, that is part of EDS, she thought straight away I had it. When I asked my GP, he said it should have been picked up in childhood, but despite spending half my life in hospital, at different appointment, seeing different specialists, I didn’t get any definitive diagnoses until I was in secondary school, then I was told it was too late to be diagnosed, I was too old to see whatever doctor was supposed to diagnose me. I have now typed the word diagnose so many times it doesn’t look like a real word any more.